When the Mind is Full

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via Addicted to Success

When you have made the calls

And sent the messages, the texts, the emails

That you feel are only the truly fair ones to send

And you still end up alone in your full mind

With it buzzing away and you not being able to reign it in

You turn to your list of “coping skills”

There is a brief moment where you feel hope

But in your gut, decidedly, you can sense the pointlessness

It is in this position that you find yourself, once again

Full of words, with no one to spill them to

In a situation where you would feel it is fair

To release all of the blackness into another’s ear

And so you sit with the feelings

Because wise ones told you if you rolled with the emotion

Rolling like a wave

That it would go away.

With time, apparently, though who knows how much.

These Things Do Pass, Only With Time

It has been nearly a week before Thanksgiving that I last blogged, and I am working really hard on not being sorry about that.  So much has happened in that space of time, and so much has remained the same.  I have had some people suggest to me that I shut down this blog, just as people have in the past when I have gone walkabout for longer than a few weeks, and maybe, in all fairness to everyone else that might be the thing to do.  For me, however, I have decided time and time again that shutting this blog down is simply not an option.

Because this blog is for me.  It’s my place to vent and think things through and scratch that writing itch and have a record (for myself, for the future Rosa, something for me to ponder light years from now when I am old and grey, when I get this world figured out a little more).  I don’t think it hurts anyone for me to blog infrequently, although maybe it is an annoyance to others at times, but I can always be reached here.

So the blog will stay, and I might write often and I might not, and some weeks I might stay up on my reading and some weeks/months may go by before I show up around your blog.  Life is not so predictable, and I’m not sure anyone would really want it to be, even though I know sometimes we wish for things to be slightly more predictable.

The crippling depression that plagued most of 2016 has mostly lifted, mostly after I was chastised for not using my sun lamp by my medication provider and ended up with a new lamp because the older one was so outdated.  And, whew boy, did it ever provide some ramped up rays, because I was feeling amazing, in no time, and before you knew it I had tripped into a hypomanic state, well on my way to mania.

So, for the last few weeks, almost a month, I have been trying to quiet down my brain while stimulating it constantly, because that was the only thing that was comforting.  The hypomanic episode slid into me deciding to:

  1. Give up caffeine completely, cold-turkey
  2. Give up Xanax, cold-turkey
  3. Quit smoking, aided by nicotine patch
  4. Reorganize and de-clutter several areas of my house
  5. Drastically change my eating habits in an attempt to lose weight
  6. Move more, in general, than I have in the past year combined

So far, I have stuck with all six of these things.  I went through most of the last month feeling like I had a severe case of the flu or maybe lithium poisoning, but it turns out that it was just withdrawal.  It’s over for the most part now, but my body is still adjusting and every day is a new challenge.

In addition to this, I have decided to actually start working on real issues in therapy, instead of the same crap every week.  I told my therapist last week that I thought maybe I was finally ready to do something about my PTSD, because it is giving me such trouble, increasingly so within the last few months.

I was referred almost a month ago into a medically supervised weight loss program, and yesterday had my initial meeting with the supervising doctor.  Just on my own, I have lost 18 pounds from December 15th of last year to now, and am excited (and slightly overwhelmed) about the plans for weight loss we made yesterday and will continue to work on.  I really like the doctor — she was very understanding and seemed quite empathetic.  She also at some point wants me to work on my emotional/mental issues with food and body image and exercise, and, as she says, I am not currently being treated by the mental health center for my eating disorder and I need to talk to someone about it if I am ever going to have sustained weight loss and a more healthy relationship with food.

I’ve honestly been doing quite a bit of ignoring everyone in my life except a few people, and that is  how I have been coping with all of the depression of last year and the mania recently, and because it is honestly just easier that way sometimes, but I have a feeling that once some of the PTSD issues are alleviated somewhat, that maybe I will be better about reconnecting with people, even though it has never been a strength of mine.

Change and more changes.  With the six things I mention earlier having been accomplished and/or continuing to work on, I finally feel like I have a chance at a much higher quality of life, and I haven’t felt that way for an extended period since long ago.

Emotion MishMash Equals Anger, Rage, Panic

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Sad, angry, happy, irritable, hostile, giddy, appearing stable, sad, lonely, panicked, giddy, irritable, hostile.

Mad, sad, crying, hysterical, eerie calm, thankfulness, slow descent back to an impressive depression, then just a big solid block of sadness, quickly surpassed by feelings of irritation at every spoken word, movement, gesture, genuinely baffled by how ugly people can be.

All of this turning into genuine anger, first directed at the self, stabbing words into my skin as if with a knife, getting myself so unsettled again that I go through crying, more anger, hostility, to anger at other people/things/objects/ideas, and again circling back to hating everything about myself and secure in the knowledge that I am ruining the life of myself and everyone in it.

This gets old and it gets tiresome and it gets lonely.  My feelings all are over the place, some of which I am accustomed to, but the anger, the hostility, the sharp tongue — I never get used to that.  I never get used to the piece of me that can and will tear another down with words, hurling just the right ones in the most sensitive spots for maximum damage.  The difference between before and now, is that I am depressed enough, I don’t really care that I am hurting other people.  That is not good.  Every jab looks to land a mat-dropping blow.

I can control it to an extent, but there are times when I feel so bad, that I don’t control it and I let my mouth run wild and I hurt people.  For the most part, it is brushed off because the other person knows it isn’t really the Rosa inside who is saying these things.  Sometimes it doesn’t get fixed that easily.

I deleted over thirty people from my Facebook over the last week, because I am convinced someone is leaking information about me to my ex step-father.  To be clear, I am done, done, DONE with that relationship and any relationship I may  have ever had with that ENTIRE side of the family.  It’s a shame, because there was one or two people that were somewhat decent, but for the sake of my mental health, I can have NO contact.  I want him to forget I exist.  Let him think I went to Alaska to can salmon or something.  Rosa, disappeared from his world, never ever again going back.  I have my reasons, many reasons which are really not worth spelling out here, because I don’t care to embarrass anyone, but done, just done.  Goodbye.  Again.  Stay gone.

I started this post shaking with anger, and that was after I wrote a long, ranting email to a friend of mine.  I need a way to get over this anger, to make it stop, to do something productive with it, if it isn’t just going to go away nicely.  Suggestions, as always, are welcome in the comments.  And even if I get mad about a comment, I won’t attack anyone, and that is a promise (that I feel that I can keep right now at 9:45PM on a Friday night).  That’s the best I can do for now.

 

 

 

New Physical Malady Intersecting with Existing Mental Illness Equals a Flare on Both Sides

I know I have blogged briefly about my skin issues and recurrent staph infections and the like, and now I have an official diagnosis:

Hidradenitis Suppurativa

You can read all about it in that link, or you can just know that it is a very painful autoimmune disease, with a genetic component, has no cure, and basically a person with this disorder has sweat glands that never developed correctly and is plagued with boils, nodules, and blisters that develop most often in places where skin rubs together.  It is considered a rare disease, there is much conflict about how to treat it (from surgery to antibiotics), and it is really hard to find a doctor that knows much about it.  There is a great deal of stigma around the disease, as misinformation abounds and let me just say that it is NOT caused by poor hygiene and it is NOT caused by being overweight (although some people anecdotally find relief by going on keto diets).  It is believed that everyone has different triggers for flares, and so far I have found that my main flare is stress.  That is a relief, of course, since heaven knows I have no anxieties or great fears or stress.  Hahahahahah!!!

I have actually be unknowingly dealing with this disease for years, it has just now reached the point where it is much worse and is needing treatment.  I learned of the diagnosis a week ago, and, rather than being disappointed in having yet another label to my name, it is actually helpful because now I can research and pinpoint and see what might help me.

I have my primary care doctor making a referral to the premiere teaching hospital in my area, basically the same place where anyone goes when they have a rare or serious disease and is not receiving adequate care locally.  I am hopeful to have an appointment within the next few weeks.  In the meantime, I am just trying to minimize pain, not aggravate things, and learn all that I can.

This flare in HS symptoms has created a bit of a flare in my depression and anxiety, which were on the uptick before I even knew this was what I was dealing with.  I am trying to stick to building structure and building mastery, as in keeping a schedule and trying to do new things out of my comfort zone.

LarBear has not been well lately, and it is becoming clear to me that I need to at some point learn that YES I CAN go into a grocery store by myself or go into a gas station and pay for gas or all of those little tasks that he takes care of so that I can pretend I don’t exist in the world and keep me from interacting with anyone.

I am midway through this current round of DBT group, and have discussed with my group leader, and I am going to at the very least take a break after it is done.  I have about six more months in this module, so its not coming to an end anytime soon, but I really feel the need to leave myself the possibility of more sessions in the future (insurance limits to four) and I am also getting slightly bored with things.

I have been having the hardest time leaving my house, and I think part of that stems from the fact that my house is so comfortable and clean and chaos-free now.  I do a lot of sitting on the porch and listening to music and writing, but have not been doing much crafting.  I really feel as if I have no talent whatsoever and I especially feel like I am wasting my time in art therapy.  Ok, I’m painting, but I’m horrible at it.  I am a failure at it.  I really just don’t feel a creative bone in my body other than writing.  At least I still have writing.

I went through a meltdown earlier this week because I decided that I was not entitled to the depression I have been feeling.  I mean, life is GOOD, I just feel so very sad.  Very, very sad.  I can’t explain it, and I can only hope that working on building structure and building mastery and trying my hardest to stay busy will bring me out of it.  That, and my med doc has given me a tiny dose of an antidepressant that is an SNRI.  Just hoping it doesn’t make me manic.

So, that’s life for now and I’m going to keep on living it.  My survival rate to this point is 100% and I intend to keep it that way.

Avoiding Self-Sabotaging Behaviors in the Mindfield of Current Happiness

Things are good, y’all.  I mean, really, really good.  LarBear and I are all moved into a really nice new (to us) home, things are organized, tons of junk and clutter has been purged, it looks good, hell, it even smells good.  There is nothing I don’t absolutely love about this new house.

And other things are good, too.  I started a mini dose of an antidepressant two weeks ago, and have had no manic symptoms.  I am slowly weaning off another medication that my psychiatrist believes is leading to my mysterious weight gain.

Things are going great with LarBear, have actually never been better.  I am in the most stable and healthy romantic relationship of my life.  We are a team and we lean on each other and we care for each other and we just make each others’ lives so incredibly much better than they ever have been.

I haven’t heard word one from my ex-step-father or any of his side of the family, and I am superbly grateful for that, and believe that has also gone a long way in minimizing my anxiety and stress level.  Getting rid of all that toxic negativity, it just did me such good.

So really, the problem is that there ARE no problems.  I went to therapy this week, and the first thing my therapist asked me, was what was I going to do to not sabotage the happiness I am finding?  Because that is what I do, it is what I have always done.  Happiness or contentment or joy have always been so fleeting for me, and it is always me chasing them off my own porch with a broom.

The answer to that question lies in many things.  First of all, how am I going to KNOW that I am sabotaging my happiness?  Well, I can spout out a short little list of things from just today that I have done to sabotage my happiness that range from picking a really silly fight (very short lived) with the LarBear to deciding to experiment with my Klonopin (as in not taking it even though I know that I really, really need it) to not taking a shower and getting dressed this morning (daily hygiene fail) to letting myself get too worked up about other people’s problems.

How do I let myself feel, or how do I reassure myself that it really IS okay to be happy, to feel joy, contentment?  I’m still working on that.  What my head always tell me is the inevitable — that it won’t last, it never has before, and its not going to start now.  My head goes on to remind me that Fall is upon us, meaning Winter soon, and that always spells horrors for my stability.

Does it have to, though?  Is it possible that I could make it through Fall and Winter relatively unscathed?  That I could keep up with my daily tasks and my hygiene and meds and relationship-building and therapy and all of the other daily skills, and maybe slide just fine through to Spring?

Well sure, I suppose it’s possible.  I just have to avoid all of these tiny self-sabotaging behaviors that I engage in, and focus on the more positive, skill building behaviors that I have been concentrating on lately.

Gee, Rosa, is that all you ask from yourself?  You are such a loser.

You see, that voice is there, so loud and strong, criticizing my every move.  It will take massive determination on my part to ignore it, to turn the mind, to practice opposite to emotion.  But I think I can.  I’m pretty sure I can, anyway.  Or at least I’m going to try.

What self-sabotage pitfalls do you find yourself getting tripped up by?  How do you keep yourself on a more positive path?  Do share your secret cures for all that ails…

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Willfulness in the Face of Necessary Medication

Anxiety and frequent panic attacks have been the menu du jour for weeks, now.  I have had my Klonopin prescribed as a scheduled medication, have had the med treater add Xanax as a PRN, and have been trying various and different DBT skills.  Very little works.  It probably works a lot less, because I am not very compliant with taking three to four Klonopin per day at scheduled times, nor allowing myself to take any of the Xanax that have been prescribed.  I have tried explaining it to my therapist, the not wanting to take more and more medication, the not wanting to become a “Klonopin whore,” the not wanting to start an addiction (because life is rough enough with *just* your regular, garden-variety mental illnesses to combat every day).

This has been a “problem” for me over the years — my distaste for (what I see as) excessive use of addictive pharmaceuticals, and, in general, not wanting to let myself just be numbed out day after day.  Is it better to suffer the multiple-times-daily breakdowns, than it is to just take a wee bit of Klonopin here and there?  My brain and heart are in a battle over it.  Those who know me best, who see me on a regular basis, they plead with me just to take a Klonopin.  Why am I being so willful, over some damn Klonopin?  Just take one!  It won’t hurt!

I have had years worth of numbing myself out with various psychiatric medications, a very brief (very, very brief) relationship with marijuana in college, and a couple very short-lived love affairs with alcohol over my 35 years.  I say “No, thank you,” to all of it.  It may seem strange, like, “what Rosa, you don’t want to get some peace?  Even your med provider thinks it is a good idea!” but it is a different scenario in my mind.  I will never go back to alcohol, to marijuana, to popping this pill and that in the hopes that I will get a bit of relief.  I never let it get to a point where it destroys my life, but I have seen so many other lives destroyed by chemical dependency, and so it is very easy for me to say, “no, not for me.”

Could I just take a little bit of Klonopin here, a tiny nibble of Xanax there, and be just fine?  Yes, probably so.  I have a hard time justifying my refusal to take medications that are prescribed to me, and I revealed to my therapist this week that, really, what is behind this refusal to take medications is the thought, the feeling, that maybe I don’t feel I should be taking ANY medications.  Maybe I don’t really have bipolar disorder, maybe I can be one of those people with bipolar disorder that does not NEED medication, but can manage things with a strict schedule and diet and exercise and meditation.  Maybe I am meant to be medication-free.

At the exact moment these words come to my mouth, I know they are untrue.  I quickly scan through the years that I tried just that, to treat my bipolar disorder without medication, and just how very dangerous it was for me.  How many terrible situations I landed myself in, how I barely made it through living in the big city alive, how I hardly escaped not one but multiple abusive relationships, how the thoughts of wanting to die and dancing on the edge of the Earth with death and Satan, himself, were a daily occurrence.

So, yes, I am prescribed quite the boatload of psychotropic medication.  I don’t want to take it, but I will keep doing so because I know in the wisest part of wise mind, that it is that medication that is making me “stable enough” to exist as I am.  I will think some more about the Klonopin and the Xanax, and eventually the daily breakdowns will become too exhausting to continue, and I might try taking some.  I won’t like it, and I will worry that I am doping myself into a corner, about becoming a Klonopin-whore  but it is quite possible that a little bit of Klonopin and Xanax thrown down my gullet on a semi-regular basis will decrease the multiple daily breakdowns, and that is something that needs to happen.

mistake

 

 

A Splash of Reality, An Explanation of Sorts

I last wrote a few days ago about the immense changes I have undergone with respect to my person, over the last few years.  It was a sunny post and a hopeful post, with nary a mention of even a minute of negative head space.

That afternoon, I read an article about “Myths of Disability,” which didn’t faze me too much, but I was stunned by what I read in the comment section. I always feel possessed to at least glance through the comment section of everything I read.  I’m uncertain why, especially when there is often such rampant negativity, ignorance, and misunderstanding.

(On a side note, it always makes me feel a bit better about the general positive trend of the comments section of my own blog and *most* of my blog friends)

What I gleaned from this particular comments section, is that there are people out there (how many, I’m not sure) who believe that people who live with disability are “less than” and therefore “deserve less than” and also are (!!) “mostly scamming the system.”

As I was reading these comments, I was thinking back to positive blog posts I have written, where the sun has been peeking out of thunderheads that had been gathered for weeks, months, years, and I wondered to myself, if I post something positive, do people presume that I am “cured” or in some way, “without problems?”

In other words, am I giving off the impression that all is perfect and life is full of sunshine and unicorns and glitter, and that it will stay that way forever and ever?  I certainly hope not.  What I am attempting to get across is that, in anyone’s life, there is good and bad, but that you can change your reaction to and perception of events so that it is less harmful to your emotional well-being.  DBT skills have taught me (and continue to teach me) how to do that, how to change my reaction and perception of events, people, feelings, circumstances.

What I celebrate in positive posts is the MOMENT, and I celebrate the current moment for being increasingly positive, because I know that the next moment or the following moment or next Thursday or in November or in 2017 that there WILL be down times.  I will fall, stumble, flail, be unable/unwilling to pick myself up at *some* point, and at that point, I will start the process all over again.

I fully accept and understand that my life will always be tinged by mental illness, but that I have learned how to pick myself up and carry on as best I can, also fully knowing and accepting that I will have to repeat that cycle of life over and over and over until I am buried and gone.  Do I do myself some sort of disservice during times of fewer symptoms to celebrate, to write obsessively and glowingly about how good life feels in this moment, here, today, now?

I really don’t think so, because when hard times hit (and they will, eventually), I can look back at these positive entries and they do give me hope, tiny little bits of hope that my situation and mood and circumstance and flight pattern WILL change, yet again, and again, and again.  I will be reinventing myself over and over for the rest of my life, in some sort of haunted synchronicity with the chemical ups and downs of mental illness, and that might sound yucky, but that is my life, and I choose to love it.  In this moment.