Another Day, Another Monkey Wrench, Solutions Welcome! (gibberish and rambling are included!)

 

I am not sure why I can’t seem to remember that I am absolutely powerless to control pretty much anything, especially the whim and will of other people or the weird Kansas weather or (to a degree) how my body will react (generally dramatically, whichever the direction) to a big medication adjustment or how my frizzy-ish hair is going to handle the day’s vacillation in humidity.

Here we are, another week has gone by, there have been ups and downs, but I am surviving, and am in fact surviving in somewhat decent humor.  A bit over a week ago, things were getting a bit too roller-coasterish with my mood, and my Seroquel was increased (for the second time this month) and I really thought that was not going to affect things (overall), too much.  I was, of course, terribly wrong and while it has given me moments of extreme grogginess, the really irritating thing is that I am just extremely hungry at all times, no matter what I have just eaten or what else I have done that day.  In addition, the sugar/carb cravings are back and I really do put a lot of that on the Seroquel.

Some of it is me, though — me not handling anxiety well, me not handing “change” well, me just reverting to slacker (eating) ways.  The other problem the past week or so has been that I have not been able to do my normal exercise routine, partly because of bad knees, but mostly because of serious toe infection (both big toes) and extreme ingrown toenails.  My primary care, thankfully, decided that now was the time to pull both toenails.  They  have actually been giving me trouble for years, so in a sense, I am happy to start over with a fresh nail bed, but it was quite painful and remains a bit more than slightly painful, the dressings are not easy to change, and I have had to back off of my daily trips to the pool to do aqua aerobics.

I am on Day One of no exercise, and one would think I would be faring better, especially considering years and years of slackerdom and the past year in which I barely moved from the couch.  No lie, however, I am going quite stir crazy and have been bouncing from project to project to project.  Nothing is satisfying the itchiness inside my brain, and to keep that itchiness company, my stomach is constantly complaining that it be filled.  It is a miracle that I am not hugely over-eating my plan calories allotment, but the desire is definitely there.

I am going to have to figure out some more creative ways of telling my cycling brain to shush, of telling my growling tummy that it is not in fact starving, of settling the  feeling in my legs of wanting to bounce around, and so forth.  I am employing all of the usual remedies, like chair exercises, doing new crafts, working on special projects for others, reading, talking Kizzie and Lucy’s ears off, browsing the internet, trying to organize different spaces.  I think I need something totally different, and I have thought about it all day and decided that maybe YOU have the suggestion that I am needing.

So please, do tell, what amuses you when you feel similarly?  I am pretty open to suggestions, provided it includes nothing illegal, smoking cigarettes, or imbibing in any kind of mood-altering substance.  Let’s hear it!

Resurfacing After a Period of Extreme Selfishness

I have barely looked at another blog, have stopped interacting with nearly everyone I follow on FaceBook, have ceased communications with the small handful of people that I had usually communicated with on a semi-regular basis, and I went underground.  My friend Marilyn had talked to me previously about hunkering down and waiting for the storms to pass, and I guess maybe I took that to extremes a bit.

The positive news about my (relatively) short hiatus from all others in my world is that:

  1.  I have been smoke-free since January 3rd.  Parts of it were hard, parts of it were nearly impossible, but I have made it this far and I don’t plan on turning back.  As a bonus to this accomplishment, I did this without totally wearing out my (now) miniaturized support system.  (as in, no dogs or boyfriends or close family members were harmed in the obtaining of over three months smoke free…yay!)
  2. I have lost 67ish pounds since December, thanks to a healthy eating plan (that is sustainable in the long-run) and almost-daily aerobic exercise.  It turns out that “those people” were actually right about exercise being good for your mood, body, and overall well-being.
  3. I have become “more social.”  That doesn’t mean I am hitting up the grocery store or going to parties or any such nonsense.  It means that, at the YMCA where I exercise every day, it is kind of similar to how it was on the long-ago “Cheers” sitcom, where everyone really DOES know my name.  I must say, it does make exercising easier, to have all of those supportive people around.
  4. I have more “stuff” figured out in my life.  Although therapy  has been helpful, I have mostly grown in life because I am learning what makes me happy and I am learning to say “no” when something doesn’t feel good and I am (constantly) trying something new every day to grow myself.

I have missed blogging pretty terribly, and have missed some of my blog friends even more, but my hopes is that I can reconnect with people easier now that I am a bit more stable.  I would love to start writing in this thing again.  I don’t know if anyone really cares about that, save for me, but I do miss writing things out.  I have been keeping an altered art journal, and writing pretty regularly in that by hand, and I plan to keep that up, but again, am hoping to maybe throw a few words up in this space every now and again.

If there is a thought in your head that I have forgotten about you, chances are pretty much 99% that this is not the case, that I just needed to disappear for awhile.  I am not going to do a bunch of shout-outs right here and now, just know I have missed you and I hope we can catch up soon.  I am bringing a happier, calmer, and healthier Rosa to the table, and I hope you stop by and say hi soon!

Hunkering Down: Wise Advice From an Even Wiser Friend

A rough few days had left me feeling emotionally raw, reactive, completely in emotion mind.  Without a shred of reason to be found within  my decidedly ailing body, mind, spirit, I phoned a friend.  Kind of like you can do on that show, “Who Wants To Be A Millionaire,” although I’m not sure that show is still on or if it’s still played that way.  Either way, the premise is the same — unsure of yourself, phone a friend and get some insight.

I didn’t directly ask for advice, but she knows me pretty well and she told me something she has told me time and time again — not everything is because of mental illness, a lot of it is just life.  Life sucking, maybe, but just life, not a symptom.  Not something to have a med change over or make any sort of drastic change over.  Her advice to me:  hunker down, a lot of it will pass.

And she’s right, a lot of this will pass.  A lot of the bad feelings are from having several major changes and being uber-busy, and now the settling comes.  We are moved, settling in, the house is set up, settle down a little more, make new routines, practice better habits, interact more or less or not at all with certain people.  Change, a lot of it, over the past few months, and change, even more than that, over the past couple of years.

It’s time to settle down, let the dust clear, see what shakes out.  Feeling bad doesn’t necessarily mean I need to have a med increase or a routine change or for anything AT ALL to happen.  My friend’s wise words, “hunker down,” made so much sense when she said them.  They made even more sense when I sat on my front porch in the fresh air, with the sun shining warmth on my face, contrasting with the cool breeze through my hair.

It was funny when Dad said almost the same thing not even an hour later, except he said, “I’m glad you were able to defend in place today and keep from going to the hospital.”  He said that, because this morning I was feeling terrible enough that I was thinking of going to the hospital, and I cancelled on seeing him or my nephew.

So, defend in place, hunker down, that’s what is going to be happening for me.  Can’t hurt, might help.

Image result for pass like a kidney stone meme

The Very Real Possibility of Happiness, Contentment, (almost) Joy, and Semi-Stability

now

I often wonder where the term “finding happiness” comes from.  I suppose, were I to do enough Googling, I would find my answer.  As for my life, I’ve spent a lot of time trying to “find” happiness, convinced it was behind this corner or within that person or perhaps covered up by old memories.

What I have found, quite recently, is that happiness is not mine (or anyone’s) to find.  Happiness is a thing that must be made, produced, created.  Happiness is a thing that you might have spent a lot of time looking for, but which was there all along, a byproduct of the doings of your life.

finding happiness quotes

Through making a WRAP (Wellness Recovery Action Plan) with the assistance of my peer mentor, I uncovered and wrote down long lists of things and circumstances and people and ideas that cause me joy.  By hanging onto those things, and working from the list every day (as in, actually completing and working on activities and subjects within the WRAP), I have managed to increase not only my feelings of happiness and contentment, but also have greatly improved my distress tolerance skills.  A few examples of items on my WRAP include making jewelry, a conversation with a special friend, to more concrete matters, such as getting at least eight hours of sleep and avoiding any sort of caffeine after 11:00 a.m.  Through the WRAP, I uncovered the circumstances that cause me to be most happy, most joyful.  They weren’t activities or people or things that I had to search for, but rather are more like daily practices that tend to give me positive stability.

hopeful mindset

I know there are people who might think I am premature in determining that I am having any sort of STABILITY in my life, but I must disagree.  The contents of life, at this moment, are quite topsy turvy, and I am handling them with relatively little drama, tears, complaints, or tantrums.

I am learning to take things as they come, and continue to work on sitting with uncomfortable emotions until another emotion can come through.  I have hope in my life, like I have never had before.  I know, for certain, that this can be attributed almost solely to learning how to turn my mind away from the negative and face forward toward people and situations and circumstances and activities that bring me joy.  The longer one can sit with a feeling of joy, the greater, and longer lasting, the feelings of contentment and happiness will be.

I have much to be grateful for, and have come a long way lately on being more appreciative and thankful in my day-to-day life.  I must say, (and really can’t say enough) happiness takes practice and work, just as it takes practice and work to STAY miserable.  Sure, it is easier to bring oneself down with negativity and maladaptive behaviors and resistance to change and willfulness, and obviously so much more difficult to turn away from the train-wrecks-in-life, but it can be done.

DBT helps me turn my attention and stay in the moment and surf my emotions, and I am thoroughly grateful I have it in my life.  Were I not practicing mindfulness and gratitude and using my skills and being effective, I would definitely be having a difficult time right now, with all of the drama swirling around my life.  Fortunately for me (and for LarBear and any other close friends and family), I have been able to really focus on DBT and really focus on doing what is most effective, or what works best to keep myself on both feet.

Letting things go, letting really anything go that is disturbing my peace…that is what DBT has taught, and teaches me over and over, every day.  It must be a conscious practice, to let things go, and it is incredibly difficult to describe to a suffering person HOW exactly to do it.  Maybe starting with the statement that it *is* quite possible, is a good first step.

held on

Feelings of Okay-ish-ness

capable

I think this is part of the human condition, rather than a function of mental illness (or wellness, for that matter).  We try so very hard to maintain a baseline, and sometimes it floats away from us, due to circumstances not within our control.

Let’s face it…very little is within our control, and especially others’ behavior and inactions and lives — those are exquisitely beyond our control.  And that little fact can drive me a bit mad.  I have the tendency to want to loop my lasso over the horns of every bull and drag it to the ground, and this is simply insanity and I cannot sustain it over the long haul.  I can (and do) work on my own issues, but I cannot *fix* or even (in most cases) alter the path of others’ behavior.

I have been quiet for the past couple weeks, simply living life, and struggling to live it on the terms which are required of me.  There is so much suffering around me and I want to reach out and heal it, but when I do, I often leave myself with scars.  I cannot help you, without being affected myself, and I am not always in a position where I can afford to be affected by anything other than my own complicated existence.

In the past few weeks, my focus has been on living in the moment, general mindfulness, willingness, practicing opposite to emotion.  In other words, Rosa is doing some hard work right about now, and sometimes when I am doing that, I have to disappear a little bit.  Because words are hard to come by, and there have been other challenges that I haven’t wanted to put a spotlight on — very real, very concrete and physical challenges that I don’t know how to wrap my own tired mind around, nevertheless explain them to someone else.

I miss blogging when I don’t do it, but it is necessary for me to shut down, or maybe even reboot my brain every once in awhile.  I haven’t been talking about it, but in the past month I have been dealing with a new mental health diagnosis, the confirmation of a new chronic physical illness, a septic system that is no longer working, the death of an aunt, worries about family members, and with all the recent rain, a basement that is full of water and must be pumped every couple of hours (and the ruin of my HVAC system and hot water heater, with the first wave of rain).

A lot going on, yes, but I am managing because I am living in the moment and not allowing myself to think too far outside of where I am right now.  I also don’t want to feel like I am complaining, because I really do have a great deal to be thankful for.  The challenges keep pouring in on my head, but I continue to have hope and faith that things will work out for the best.  That fact, that I still have hope and faith even with the storms of drama around me, is near-miraculous, as my general tendency (once-upon-a-time) would be to catastrophize and live in panic.  I don’t want to do that anymore, and I actually refuse to do that anymore.

some days are betterwill write more about the new physical and mental health diagnoses at some point, and at another  point I might take a moment to complain about my failed septic/HVAC/basement disasters.  For today, though, I just want to be grateful for things like my LarBear, family, friends, and for my new-found sense of hope and ok-ish-ness.

 

Week in Review: Positivity and Thankfulness in the Face of Extreme Sleep Deprivation

I went from posting six times last week to not even touching this blog this week.  My thoughts have been super disorganized the past several days, due to a lack of sleep which is coming about thanks to problems with my CPAP machine (device that treates sleep my extra-severe sleep apnea).  So, while I HAVE been lying down for three or four hours at a time, I have been waking (according to the technician who downloaded my unit today) multiple times a night because I am, well, jeez, I’m just not breathing, consistently.

That kind of sleep deprivation is something of the worst kind, because while you *think* you are sleeping, you aren’t getting even close to any sort of sleep that is restful.  This leaves one with disorganized thoughts, gaps in time and memory, and a feeling that some sort of slow-growing mold is encasing the brain, rendering the little electrical impulses normally found there to be quite subdued.

To all of the bloggers I follow, I’m sorry to say that I just deleted my inbox full of notifications, feeling that I had to give myself a “re-do” for this week, and that I couldn’t do that with all of those unread posts making me feel guilty.  So, I’ve missed some of what y’all had to say this week…my bad, but sometimes it can’t be helped.  I *am* going to go back and answer comments on my last two posts here in the next day or so, but I thought it was prudent to throw a post up here so that anyone who noticed I was *back* last wouldn’t think I’ve totally dropped off again.  Just not the case, at all.

Some really great things happened this week, and remain unmarred (mostly) by the trials and tribulations of sleep deprivation.  I had a really good therapy appointment this week, and I also made peace with my peer support specialist.  It is amazing what can happen when you just ASK for what you NEED, and when you are also communicative about what your expectations are and just very HONEST about every single thing you can think of.

My schedule has now straightened itself out to the point where it is the exact same every week.  There will be no more panicked thoughts (I hope) in the middle of the night, thinking there is somewhere I am supposed to be at such-and-such time the next day.  Now, everything has been set up to repeat, and I can just roll with it (and hope it *mostly* stays that way).

This is a huge relief, because it was one of the things I have been so bent out of shape about.  I also found a great place to meet in the community with my peer support person…a small cafe that is very empty midday, has very comfortable furniture, is bright and full of windows, and lacks the dark and trendy feelings of most coffee shops.  I love it so much, I might hang out there sometimes, even when we are not meeting.  They also have really inexpensive drinks and desserts, a plus, no doubt.

I have further cleared things up with my peer support person (who really needs a blog nickname, what I have so far is The Trucker’s Wife, what do you think?) by using F.A.S.T. (a DBT skill in which you ask for something but keep your self-respect, as in no over-apologizing or the like) and just good ol’ common sense.  I have decided to give her another chance, and would probably actually give her many more, because, while she is not the best at returning phone calls, she IS good at returning emails (yay, a way to communicate!!) and she does appear to care, and she is quite kind and understanding, and is letting me do the self-help book more on my own.  It appears that this will all be working out, quite well.

I have several other things, which I am quite grateful for at this present moment, and which I’m going to list-post, because, yeah, I know that no one really wants this post to go past 700 words (least of all me):

  1.   Celebrating good use of DBT skills this week in interacting with others.  A few arguments were avoided, my anxiety was calmed more than once, and things just feel more level, even *with* the sleep deprivation.
  2. I do have the insurance to monitor and fix this sleep deprivation problem.  The problem right now is getting in to be seen at the sleep center, because they are so backed up.  I do have an appointment on Tuesday, and my medical supply store RT offered to help me on Monday, if I need it.
  3. People can be really decent to you when you treat them with more respect than what they are expecting to get.
  4. The relationship between LarBear and I gets better by the minute.  We have laughed our butt’s off this week at many different things, as well as spent a lot of good quality time, several productive discussions, and he is really just everything I ever wanted out of a significant other, and always thought that I could never get.
  5. Thinking about what I might do post-DBT…maybe become a peer support for the group.  Just throwing that out there as a wild and crazy idea, and that is also way down the road (about a year), but I think it might be really cool.

I found this photo/word/thingie on FB, and thought it was just exactly how I feel about my life right now, so I wanted to share it with y’all.  It’s with this that I’m out, off to celebrate number 6, which was finding some really nice steaks in my freezer!

numinous

Can’t Touch This

Up and down and all around, as you know if you’ve been reading.  The past two days, the depression has really stabilized, but I have been left with soul-crushing anxiety.  Anxiety that absolutely nothing touches — not a single DBT skill has gone untried, a PRN gone untested, a theory, a trick, an avoidance, nothing.  I don’t remember the last time I had such intractable anxiety.

Usually, there is something that will work.  I can fool my brain for long enough to fall asleep or sweep the unpleasantness far enough under the rug that it doesn’t peek out for a few hours.  I haven’t been able to do this lately, and the added near-unbearable irritability that has come with it…well, I just don’t know.  I just don’t know about anything right now.

Well, that’s not altogether true, I suppose.  I know I’m not ready to give up and I know I’m determined to not hurt the people around me who love me most with this irrational irritability and anxiety.  I’ll keep trying this and that because, all it takes is one thing to ease it for awhile, then maybe I can sleep for awhile, or at least rest, and then the irritability can go away.

The anxiety has been the worst in the mid-morning and the beginnings of the evening.  I keep find myself trying to find reason behind a most unreasonable emotion.  As if I am dissecting anxiety, and if I can figure out how it’s heart beats, then I can clip the right blood source and it will die.  I am far too rational, too logical, too black-and-white in my thinking.

Perhaps there is no what/when/why/whatever to this, and my trying to dissect it further makes it worse.  Perhaps that.  The thought that I am making this worse by all of my struggling seems to hit home, and I ponder to myself that maybe I need to rest and float upon these waves of anxiety, instead of trying to kick my legs and flail my arms in an attempt to stay above water.  You know, like JulieTwo always said, depression is an ocean, and if you float you survive, and if you fight, you die.

Food for thought, right there, and maybe QoB was right in suggesting that I spew it all out here on this blog.  Because, the fight or float thing makes sense to me, but I need to retrain myself to float.  Floating is hard, y’all.  Maybe this is also just like my most recent favorite gem — that it is so frustrating to watch someone flail in knee-deep water, believing they will drown, when all they need is to stand up.

I’m gonna try that.  I’m gonna float and I’m gonna stand up, and I will persevere in the end, mostly because I am too stubborn not to.

“Rosie’s Lullaby”

She walked by the ocean,
And waited for a star,
To carry her away.

Feelin’ so small,
At the bottom of the world,
Lookin’ up to God.

She tries to take deep breaths,
To smell the salty sea,
As it moves over her feet.

The water pulls so strong,
And no-one is around,
And the moon is looking down.

Sayin’,
Rosie – come with me,
Close your eyes – and dream.

The big ships are rollin’,
And lightin’ up the night,
And she calls out, but they just her pass by.

The waves are crashin’,
But not making a sound,
Just mouthing along.

Sayin’,
Rosie – come with me,
Close your eyes and dream,
Close your eyes and dream,
Close your eyes and dream.